I never got around to that Christmas post and now I don’t feel like doing one… so just go back to the other blog for pictures and updates on that.
The insurance issue has gotten really out of hand. Apparently there is a major uproar with the hospital and Western Union as just about everyone has had disruption of coverage. I’m supposed to call and talk to someone and see what can be done (or at least have my complaint documented). My problem is.. I don’t know how much of this is a problem with the insurance or just a common problem for parents with ASD kids. ASD isn’t reknown for being covered by most insurance companies… but I keep hearing people say that they’ve heard from a friend of a friend of a cousin of a boyfriend (you get the idea) that there’s new legislation that’s supposed to help ASD families… only trouble is that I can’t find anyone who can tell me definititively about it. I’ve called so many people… and most of them are like “well, we’d like to help, but you’re not actually a client of ours so… sorry!” and I’m sent on my merry way.
So how do I find out what the heck I’m even supposed to be doing? At this point we can’t afford for Sophie to even go back to Dr. Kelly as the insurance is saying that seeing him doesn’t positively effect Sophie’s diagnosis so it’s not a necessary visit. Plus the whole thing with therapy just isn’t working out either… again insurance is saying that since Sophie can’t be “cured” from her ASD/PDD diagnosis then there’s no “need” for her to do therapy.
I think this has been the root of my Christmas Melancholy. I just feel like I’m beating my head against a wall and I literally can’t find a way to stop.
And most of me just wants to stop all this madness and say “yeah, she’s different, maybe even PDD/ASD… so what? who cares? she’s learning, she’s coping, she’s learning life skills! Heck she can bake a cake pretty much by herself!! doesn’t that count for SOMETHING???”
As I told Dr. Kelly the last time I saw him… I’m cracking… I really am. Sophie’s doing great, the boys are doing great… but now we’ve got what looks like insurmountable issues (between figuring out if we should still send Sophie to therapy and figuring out how on God’s Green Earth we’d pay for it and fighting with insurance and trying to figure out the secret trick to making all of this work, and did I mention that Jim’s a real laissez-faire kinda guy? so he’s not really in the trenches here with me… I’m not bashing him, I’m just stating that he doesn’t have that she-bear fight that I have (and really I’d be surprised for a man to have she-bear instincts)… regardless I’d like to lay down the armor for a minute, have a pity me moment and then move on, but I can’t because who’s going to hold the fort while I do that?)
OK! Enough of that… this is Sophie’s blog, not an extention of “oh-pity-me!”
Sophie… Sophie… yeah… Sophie… she’s doing great 
She’s started doing art again, although she’s doing her most creative stuff with photography. I’ve really enjoyed looking through her photos and will be uploading them here soon. Maybe even today. Don’t hold your breath though.
