Life with Sophie

A couple days ago we called our insurance company to find out if the genetic testing, deeper assessment and therapies that Dr. K wants are covered.  We were informed that since Sophie has a tentative diagnosis of PDD they will not pay anything. 

Nothing.

At all.

Ever.

Kidnetics (the therapy group) is in network, but not if you have a neuro, developmental, or behavioral diagnosis. 

Interesting.

Most of the reasons that you would go to Kidnetics is neuro, developmental or behavioral.  GRRRRR!

The lady I spoke with from our insurance was rude.  Exceedingly rude… unforgivingly rude.  She snidely said “well good luck finding another insurance since this is now considered a pre-existing condition <hehehe>.”  That was so uncalled for, especially since I hadn’t mentioned getting different insurance coverage.

So I spent part of this afternoon calling a few places.  All but one was closed already for the holidays.  I did get in touch with someone at SCDDSN who did everything in his power to help, even though he’s not in the autism/PDD department.  He’s supposed to do some footwork/networking for me and get back to me on Monday.  That’s work much appreciated! 

I honestly have no idea what we are supposed to do now.  I’m going to call Kidnetics to see what they say and see if they take the PDD waiver (I still totally don’t understand that so anyone out there who understands it please leave a comment!!). 

And it’s not helping that Sophie is bouncing off the walls and going mental because Iz will be here tomorrow.  She thinks that she and Iz will be going to castle but that’s not going to happen this weekend.  We are going in 2 weeks, but that’s a hard concept for Sophie to understand.  We’ve had a lot of melodramatic meltdowns today (she just had one over being told no) and I’m certain she’s going to continue spinning out of control until Iz gets here.

So I allowed her to do face paints this afternoon.  That bought me about 2 hours of happiness, then back to the craziness…. but I think that had something to do with the paints.  While the face paints are the ultra safe ones, they still hype her up.  Supper was a semi-fiasco.  Sophie, who normally eats like a horse, decided she wouldn’t eat, which prompted Dandy, who never eats well, to refuse to eat as well.  While I was fine with them not eating (with the understanding that they wouldn’t eat again until breakfast), M out ranked me and cajoled, threatened and physically fed the two of them. 

There are now tears coming from the kitchen, with Jim saying a lot of “no ma’ams” which is never good.  I’m voting for a super early bedtime tonight.